RESOURCES

MEDICAL CONDITIONS

 

Cerebral Palsy:  

UCLA Orthopaedic Center for Cerebral Palsy                

National Institute of Neurological Disorders and Stroke           

United Cerebral Palsy           

Children's Neurobiological Solutions

 

Books about Cerebral Palsy

Cerebral Palsy: A Complete Guide for Caregiving by Freeman Miller    

    and Steve J. Bachrach                                                                   

Children with Cerebral Palsy: A Parents Guide, Edited by Elaine Geralis                                                                                         

Teaching Motor Skills to Children With Cerebral Palsy And Similar

    Movement Disorders: A Guide for Parents And Professionals by    

    Sieglinde Martin

 

Cortical Visual Impairment:

Center for the Partially Sighted

 

Books about Cortical Visual Impairment

Children With Visual Impairments: A Guide for Parents by M. Cay Holbrook

Teaching Visually Impaired Children by Virginia E. Bishop

Practical Paediatric Ophthalmology by D. Taylor and C. S. Hoyt

 

Dysautonomia:

National Dysautonomia Research Foundation

Dysautonomia Information Network

Dysautonomia Foundation

 

Articles about Dysautonomia

http://www.medicalnewstoday.com/articles/76785.php

 

Dysphagia:

VitalStim Therapy               

Pasadena Child Development Associates                     

National Institute on Deafness and Other Communication Disorders                    

American Speech-Language-Hearing Association

 

Books about Dysphagia

Achilles, Elayne, The Dysphagia Cookbook: Great Tasting and Nutritious    

    Recipes for People With Swallowing Difficulties

Cichero, Julie A. Y. &Murdoch, Bruce E., Dysphagia: Foundation, Theory

    and Practice

Hall, Kelly D., Pediatric Dysphagia Resource Guide (Singular Resource    

    Guide Series)

 

 

Dystonia:

www.dystonia-foundation.org

 

Books about Dystonia

Surviving Dystonia by Carmine Petrangelo

Clinical Diagnosis and Management of Dystonia by Thomas Warner and        

    Susan Bressman

Dystonia: Etiology, Clinical Features, and Treatment by Mitchell F Brin,

    Cynthia L Comella, and Joseph J Jankovic

 

Epilepsy:

CURE Epilepsy

End Epilepsy

Epilepsy.com                                                                                                                                                    

The Charlie Foundation   

www.matthewsfriends.org

 

Books about Epilepsy

Devinsky, Orrin, Epilepsy: Patient and Family Guide

Freeman, John M. , Seizures and Epilepsy in Childhood

Holmes, Gregory L. , Childhood-Specific Epilepsies Accompanied by    

    Developmental Disabilities: Causes and Effects

Schwartzkroin, Philip A. and Rho, Jong M. Edited, Epilepsy, Infantile

    Spasms and Developmental Encephalopathy

 

Support Groups for Epilepsy

For parents of children with epilepsy: (Locations include West Los Angeles,

    Pasadena, Ventura, San Bernadino and OC)

http://www.epilepsy-socalif.org/img/ParentSupportGroup.doc

 

Feeding Tube:

Alberta Home Nutrition Support

 

Books about Feeding Tube

Nightingale, Jeremy, MD, Intestinal Failure

 

Gastroesophageal Reflux Disease:

Infant Reflux Disease.com

 

Books about Gastroesophageal Disease

Granderath, Frank Alexander & Kamolz, Thomas & Pointner, Rudolph,

    Gastroesophageal Reflux Disease: Principles of Disease, Diagnosis, and        

    Treatment

Orlando, Gastroesophageal Reflux Disease (Gastroenterology and Hepatology)

Pace, Fabio, Managment of Gastroesophageal Reflux Disease (Management

    Of...)

 

Global Developmental Delay:

www.aan.com                                       

American Academy of Neurology

www.childneurologysociety.org

 

Books about Global Developmental Delay

A Parent's Guide to Developmental Delays: Recognizing and Coping with    

    Missed Milestones in Speech, Movement, Learning, andOther Areas by           

    Laurie Fivozinsky LeComer

Continuity and Change in the Social Competence of Children With Autism,    

    Down Syndrome, and Developmental Delays (Monographs of the Society for    

    Research) by Marian Sigman and Ellen Ruskin

 

 

Immunodeficiency:              

Epilepsy.com

 

Books about Immunodeficiency

Parker, Philip M. & James, The Official Parent's Sourcebook on Primary

    Immunodeficiency

 

Infantile Spasms:

National Institute of Neurological Disorders and Stroke

Children's Neurobiological Solutions

 

Books about Infantile Spasms

Infantile Spasms: Diagnosis, Management and Prognosis by James D.

    Frost, Jr and Richard A. Hrachovy

Epilepsy, Infantile Spasms and Developmental Encephalopathy, Edited

    by Philip A. Schwartzkroin and Jong M. Rho

 

Pulmonary Hypertension:

http://www.americanheart.org/presenter.jhtml?identifier=11076

http://www.phassociation.org/

http://www.mayoclinic.com/health/pulmonary-hypertension/DS00430

 

Reactive Airway Disease:

A Physician's Guide To Return To Work

 

Books about Reactive Airway Disease

Tinkelman, Charles K. Naspitz, Childhood Asthma: Pathophysiology

    and Treatment

 

Support Groups for Reactive Airway Disease

Children’s Healthcare of Atlanta pediatric advice nurse is available 24        

    hours a day at 404-250-KIDS

 

Sleep Apnea:

rologysociety.org

http://www.sleepapnea.org/index.html

 

THERAPIES

UCLA Medical Center

Center for Applied Rehabilitation Technologies

Center for Developing Kids

 

Augmentative Communication Therapy

http://www.aacinstitute.org

http://www.alsa.org

http://www.aacproducts.org

http://www.isaac-online.org

http://www.resna.org

http://www.aac-rerc.com

 

Books about Augmentative Communication Therapy

Beukelman, D.R., & Mirenda, P. (1998). Augmentative and alternative               

    communication (2nd ed.). Baltimore: Paul H. Brookes Publishing Co.

Beukelman, D.R., & Ansel, B. (1995). Research priorities in augmentative and        

    alternative communication. Augmentative and Alternative Communication,

    11, 131-134.

Light, J.C., Beukelman, D.R., & Reichle, J. (2003). Communicative competence

    for individuals who use AAC: From research to effective practice.

Baltimore, Paul H. Brookes Publishing Co.

Downey, D., & Hurtig, R. (2003, July). Augmentative and alternative

    communication.

Pediatric Annals, 32(7): 467-474.

 

Music Therapy

www.musictherapy.org

 

Neurofeedback

www.eeginstitute.com

www.eegresearch.com

www.eegdirectory.com

 

Books about Neurofeedback

Robbins, Jim, A Symphony in the Brain: The Evolution of the New Brain

    Wave Feedback

 

 

Occupational Therapy                                                                          

http://www.aota.org/Consumers/WhatisOT/FactSheets.aspx

 

Speech Therapy

NCVS                                        

AAC Institute           

AAPPSPA                                   

HSDC                                           

http://communicationconnects.com/therapist_techniques.asp

 

Therapeutic Listening

Books about Therapeutic Listening

Listening with the Whole Body by Shiela M. Frick, OTR/L, and Colleen

    Hacker, MS, OTR/L

 

Vision Therapy      

www.visiontherapy.org/

 

MEDICAL TREATMENTS

 

IVG & Electrical Stimulation

The Charlie Foundation                  

Epilepsy.com

http://www.facs.org

 

Lysis of Adhesions

http://www.facs.org

http://www.adhesions.org

 

Books about Lysis of Adhesions
A patient’s guide to adhesions-International Adhesions Society website.                        

EDUCATION
Carlson Home Hospital Program

 

 

 

Special Needs Equipment & Supplies
Adaptive Mall
Southpaw Enterprises
ExoMotion

 


More Links
Special Needs Resource Center
Wrightslaw
Team of Advocates for Special Kids
Locks of Love