RESOURCES
MEDICAL CONDITIONS
Cerebral Palsy:
UCLA Orthopaedic Center for Cerebral Palsy
National Institute of Neurological Disorders and Stroke
Children's Neurobiological Solutions
Books about Cerebral Palsy
Cerebral Palsy: A Complete Guide for Caregiving by Freeman Miller
and Steve J. Bachrach
Children with Cerebral Palsy: A Parents Guide, Edited by Elaine Geralis
Teaching Motor Skills to Children With Cerebral Palsy And Similar
Movement Disorders: A Guide for Parents And Professionals by
Cortical Visual Impairment:
Center for the Partially Sighted
Books about Cortical Visual Impairment
Children With Visual Impairments: A Guide for Parents by M. Cay Holbrook
Teaching Visually Impaired Children by Virginia E. Bishop
Practical Paediatric Ophthalmology by D. Taylor and C. S. Hoyt
Dysautonomia:
National Dysautonomia Research Foundation
Dysautonomia Information Network
Articles about Dysautonomia
http://www.medicalnewstoday.com/articles/76785.php
Dysphagia:
Pasadena Child Development Associates
National Institute on Deafness and Other Communication Disorders
American Speech-Language-Hearing Association
Books about Dysphagia
Achilles, Elayne, The Dysphagia Cookbook: Great Tasting and Nutritious
Recipes for People With Swallowing Difficulties
Cichero, Julie A. Y. &Murdoch, Bruce E., Dysphagia: Foundation, Theory
Hall, Kelly D., Pediatric Dysphagia Resource Guide (Singular Resource
Dystonia:
Books about Dystonia
Surviving Dystonia by Carmine Petrangelo
Clinical Diagnosis and Management of Dystonia by Thomas Warner and
Dystonia: Etiology, Clinical Features, and Treatment by Mitchell F Brin,
Cynthia L Comella, and Joseph J Jankovic
Epilepsy:
Books about Epilepsy
Devinsky, Orrin, Epilepsy: Patient and Family Guide
Freeman, John M. , Seizures and Epilepsy in Childhood
Holmes, Gregory L. , Childhood-Specific Epilepsies Accompanied by
Developmental Disabilities: Causes and Effects
Schwartzkroin, Philip A. and Rho, Jong M. Edited, Epilepsy, Infantile
Spasms and Developmental Encephalopathy
Support Groups for Epilepsy
For parents of children with epilepsy: (Locations include West Los Angeles,
Pasadena, Ventura, San Bernadino and OC)
http://www.epilepsy-socalif.org/img/ParentSupportGroup.doc
Feeding Tube:
Alberta Home Nutrition Support
Books about Feeding Tube
Nightingale, Jeremy, MD, Intestinal Failure
Gastroesophageal Reflux Disease:
Books about Gastroesophageal Disease
Granderath, Frank Alexander & Kamolz, Thomas & Pointner, Rudolph,
Gastroesophageal Reflux Disease: Principles of Disease, Diagnosis, and
Orlando, Gastroesophageal Reflux Disease (Gastroenterology and Hepatology)
Pace, Fabio, Managment of Gastroesophageal Reflux Disease (Management
Global Developmental Delay:
Books about Global Developmental Delay
A Parent's Guide to Developmental Delays: Recognizing and Coping with
Missed Milestones in Speech, Movement, Learning, andOther Areas by
Continuity and Change in the Social Competence of Children With Autism,
Down Syndrome, and Developmental Delays (Monographs of the Society for
Research) by Marian Sigman and Ellen Ruskin
Immunodeficiency:
Books about Immunodeficiency
Parker, Philip M. & James, The Official Parent's Sourcebook on Primary
Immunodeficiency
Infantile Spasms:
National Institute of Neurological Disorders and Stroke
Children's Neurobiological Solutions
Books about Infantile Spasms
Infantile Spasms: Diagnosis, Management and Prognosis by James D.
Frost, Jr and Richard A. Hrachovy
Epilepsy, Infantile Spasms and Developmental Encephalopathy, Edited
by Philip A. Schwartzkroin and Jong M. Rho
Pulmonary Hypertension:
http://www.americanheart.org/presenter.jhtml?identifier=11076
http://www.mayoclinic.com/health/pulmonary-hypertension/DS00430
Reactive Airway Disease:
A Physician's Guide To Return To Work
Books about Reactive Airway Disease
Tinkelman, Charles K. Naspitz, Childhood Asthma: Pathophysiology
Support Groups for Reactive Airway Disease
Children’s Healthcare of Atlanta pediatric advice nurse is available 24
hours a day at 404-250-KIDS
Sleep Apnea:
http://www.sleepapnea.org/index.html
THERAPIES
Center for Applied Rehabilitation Technologies
Augmentative Communication Therapy
Books about Augmentative Communication Therapy
Beukelman, D.R., & Mirenda, P. (1998). Augmentative and alternative
communication (2nd ed.). Baltimore: Paul H. Brookes Publishing Co.
Beukelman, D.R., & Ansel, B. (1995). Research priorities in augmentative and
alternative communication. Augmentative and Alternative Communication,
11, 131-134.
Light, J.C., Beukelman, D.R., & Reichle, J. (2003). Communicative competence
for individuals who use AAC: From research to effective practice.
Baltimore, Paul H. Brookes Publishing Co.
Downey, D., & Hurtig, R. (2003, July). Augmentative and alternative
communication.
Pediatric Annals, 32(7): 467-474.
Music Therapy
Neurofeedback
Books about Neurofeedback
Robbins, Jim, A Symphony in the Brain: The Evolution of the New Brain
Occupational Therapy
http://www.aota.org/Consumers/WhatisOT/FactSheets.aspx
Speech Therapy
http://communicationconnects.com/therapist_techniques.asp
Therapeutic Listening
Books about Therapeutic Listening
Listening with the Whole Body by Shiela M. Frick, OTR/L, and Colleen
Hacker, MS, OTR/L
MEDICAL TREATMENTS
IVG & Electrical Stimulation
Lysis of Adhesions
Books about Lysis of Adhesions
A patient’s guide to adhesions-International Adhesions Society website.
EDUCATION
Carlson Home Hospital Program
Special Needs Equipment & Supplies
Adaptive Mall
Southpaw Enterprises
ExoMotion
More Links
Special Needs Resource Center
Wrightslaw
Team of Advocates for Special Kids
Locks of Love