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   Overview of Camille’s Medical Conditions


In January 2004 (at three months old) Camille was diagnosed with West Syndrome (also known as Infantile Spasms), a rare condition characterized as a form of ‘catastrophic childhood epilepsy’. Camille’s seizures began when she was three weeks old and at the peak, she had nearly a thousand seizures daily.  Camille's seizures were controlled after 18 months, through a combination of anti-epileptic medications and a novel treatment using intravenous immunoglobulins.  She was recently diagnosed with Electrical Status Epilepticus in Sleep, which may provide insight into her recent skill regression.  

The severity of Camille's seizure activity impaired her daily functioning of such basic skills as feeding, vision, motor control and cognitive ability. Over time, Camille was also diagnosed with other conditions including cerebral palsy, cortical visual impairment, feeding impairment, immune system deficiency, reactive airways, gastroesophageal reflux disease, pulmonary hypertension, sleep apnea and global developmental delays.  

You can read more about each of Camille’s medical conditions by clicking on the links below.


Cerebral Palsy

Chronic Intenstinal Pseudo Obstruction

Cortical Visual Impairment


Dysphagia (Swallowing Disorder)


Electrical Status Epilepticus in Sleep


Feeding Tube

Gastroesophageal Reflux Disease

Global Developmental Delay

Immunodeficiency (Hypogammaglobulinemia)

Infantile Spasms

Pulmonary Hypertension

Reactive Airway Disease

Sleep Apnea


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